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Patient Event for Scleroderma

June 6, 2017 at 9:01 am

Lung Disease Week at the ATS represents a society-wide initiative to recognize the many rare lung disorders for which Public Advisory Roundtable organizations provide support and guidance to patients and their families. June 4-10 acknowledges patients with Scleroderma, and the ATS is collaborating with PAR partner, the Scleroderma Foundation.

Resources for Scleroderma Week at ATS, including patient stories, testimonials, interviews, videos, photos, support group information, details on ongoing legislative efforts and clinical trial updates, are available on our website. Material was developed by ATS leaders Mitch Olman, MD; Kristin Highland, MD; and Kerri Connolly of the Scleroderma Foundation. Help bring rare disorders like scleroderma to the forefront. Download and share the following Information for Patients and Information for Experts.

PAR Live & On Location in Pennsylvania!

Be sure to attend the in-field Patient Education Day and live webinar from 10 a.m. to 3 p.m. ET this Saturday in Pennsylvania. Past participants consider these opportunities highly relevant and informative.

Recordings from Cystic Fibrosis Week, held in April, are now available on our website. Don’t forget to save the date for the next in-field event Sept. 10-16 in recognition of Nontuberculous Mycobacteria.

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